As always, thank you for all your lovely messages.
Many of you have been asking if you should send flowers or if there is a charity that you can donate to. Clare and I would prefer not to receive flowers and ask that you consider making a donation to a wonderful little charity called Little Hearts Matter, who have been of immense support to us during Edward’s 4 years with us. I have set up a fundraising page (link below) and we would be enormously grateful if whatever you might have spent on flowers could be used to help another child and family affected by Edward’s condition. Thank you.