Edward ‘Ned’ John Cardoza Wheatley passed away just before 5.30am this morning, peacefully with our arms around him. He was surrounded by love every day of his life.


155 thoughts on “Ned

    1. Natalie Holmes

      Such sad news. What a wonderful little boy who was a truly inspirational little warrior! All my love and thoughts with Ned’s family at this timexx

  1. Lizzie

    So sorry. We will continue to pray for you all. Our hearts are broken. So much love. God bless you Ned what an awesome boy xxxxx

  2. Freya

    I’m so sorry to hear of Ned’s passing. He was a very brave heart warrior, and as fellow HLHS parents, your blog, Ned’s story has touched us deeply. Rest in peace little one xxxx

  3. Shepherds

    He filled our hearts with sunshine and love. May he sleep peacefully now.
    Our hearts are with all of you.
    Jo, Shep, Maisie, Alice and Cameron xxxxx

  4. Jane

    Our love and prayers continue. You have been very special parents to a very special boy, no-one could have done more for him. Ned will stay in our hearts as part of the family.

  5. Emma Pete and Rosie

    To the most precious special little boy, we love you and will always remember your smile, your strength and your amazing spirit. xxxxxxxxxx
    To Clare, Andy, Alice and Arthur, Jenny, John and all the family, we send you so much love and we feel so deeply for you at this time. Emma Pete and Rosie xxxxx

  6. Michelle

    Following Ned’s story on here has been inspirational and heartbreaking at the same time, and to read this morning that your brave little soldier is now marching with the angels touches mine and everyone elses heart like no other. What amazing strength you have shown throughout this journey. My thoughts and prayers are with you and your family at this time.
    Michelle xxx

  7. garry stoner

    such sad news this morning – our prayers and thoughts are with your family Andy, and especially for Ned, such a brave boy. Garry and Julie.

  8. Aisling

    Such a small boy had such a massive impact on our hearts. Such sad, sad news. Sleep tight sweet soldier, brave boy. Love to all who love you. X

  9. Ros

    I can hardly imagine the jumble of emotions that you, Ned’s family and friends, must be feeling now it’s finally over. My heart goes out to you. Through his sickness and short life, Ned brought together many people, who do not all know each other, in love, prayer and healing. That’s powerful stuff and, even of itself, a magnificent purpose for a life. Thank you Ned. With love.

  10. Beanie

    So deeply saddened by your news. I pray you find some consolation knowing your lovely, brave little Ned is with the Lord in Heaven. We send all our love to you all and will keep you in our prayers. Xxxx

  11. ann-rachel

    Praying so much for you all, such heartbreaking news. Thank you for the privilege of sharing your journey, I feel I know Ned yet I never met him. He has entered my life and so many this last few weeks. With love

  12. Cally

    Rest in peace sweet Ned. Your fight and spirit have been an inspiration and will never be forgotten. To Clare, Andy and all the family, we send all our love to you. We’re glad Ned had you in his life every day.

    All our love
    Cally, Stu and Jude xxxx

  13. Julie

    The bravest of brave little Ned, you will always remain the most courageous and insprirational boy I have had the pleasure to know,
    Your spirit and smile will always be in my heart.
    Sleep tight darling Ned, God bless xx
    Clare, Andy, Alice, Arthur, Jenny, John and all the family my thoughts, love and prayers go out to you xxx

  14. Sarah James Sparrow

    Am so sorry for your loss. I cannot begin to imagine your pain. Feeling very privileged that our lives have crossed with a very special and strong brave boy with an amazing family. Thinking of you, praying and sending love to you all.

    Sarah, Mike, Guy and Elsa

  15. Val and David

    Words cannot express the sadness we are feeling and we send you our support and love. Ned was a very courageous little boy and was so lucky to have a happy and stable life with such wonderful and devoted parents.

    Our love and thoughts are with you,

    Val and David

  16. Liza

    Sleep well brave boy, free from pain and suffering and in the knowledge you have inspired so many and are so loved. X

  17. Jo Gregory

    I have been so deeply moved by your diary and by Ned’s brave fight and little can be said to ease your pain at his loss. He was clearly a very special little boy. I am holding you all in my thoughts and prayers.
    Sleep well sweet Ned. Xx
    Jo Gregory (a friend of Fiona’s)

  18. fiona

    Very sad for you. God bless you.
    May you have wonderful memories and may God give you all His peace on this sad day and going forward.

  19. Pettifers

    RIP Edward, a dear little boy, who was surrounded and cushioned by so much love and care from his amazing parents, grandparents, aunt, uncle and special playmates Alice and Arthur. Feeling for you all on this saddest of days, Sandra and Alex xox

  20. Emma Clothier

    We are so sorry for your loss, Rest in Peace Ned xx
    We will continue to pray for you all and we send you our biggest hugs xxxx

  21. Fran and Malc

    Sleep peacefully sweetheart.
    Clare, Andy, Alice, Arthur, Jenny, John and the rest of the family, our hearts are with you all and we send all our love .
    Fran and Malc xxxx

  22. Kerry

    In the arms of the angels, god bless and sleep tight Ned, now free from pain.
    Ned chose the most amazing parents that gave everything they had for their precious little boy. I continue to pray for all the family at this sad time.
    Much love xxx

  23. Akan

    We pray that he passed away a martyr. We also pray that he continues to cherish in that love everyday in his new life. He needs love & prayers more now than ever in order to make it to his new home, where no doubt he will await to one day reunite with his famiy.
    Most heart felt feelings of sorrow and loss with you now mate be strong continually in this sad time. We pray that he is in peace & just because he has left you physically no doubt spiritually he will always be with you & your family.

  24. Nikki shears

    Sleep well sweet ned- the bravest boy i have ever read about! My heart is so very heavy this morning for ned and for you Andy and Clare, the most amazing parents. I cannot imagine what you must be going through.
    I hope for peace for all your family at this sad time.
    Love Paul, Nikki, Sophie & kian x x x x

  25. Diane Berry

    Bob & I send our heartfelt love and we are so very sorry that Edward, who was such a special boy and a precious part of our nursery, has lost his fight. Thinking of you all. X
    Bob & Diane

  26. Vickie Holloway

    Sleep tight beautiful boy, no more fighting now. Such a brave courageous trooper, you have taught us all soo much and left an inprint on all of our hearts. Clare Andy Alice Arthur the amazing grandparents and all those affected I send you out deepest condolences and love xxx

  27. Sarah Watson

    Your beautiful boy will be so missed – he was just lovely. We are thinking of you.
    Sarah, Matt, Em and Thomas “tom-Tom” Watson

  28. Catherine Vogelenzang

    Thank you for sharing Ned’s journey with us. I pray that you will have peace and strength for these coming days. He touched my heart in a special way I will never forget.
    ( a heart gran)

  29. Steff, Dave, Bethany, Jethro and Tirzah

    Dearest Clare and Andy. You have constantly been in our prayers for so long, and we will carry on praying for you through his heartbreak. Thank you for allowing us to journey with you. We will still be praying and holding you. Sending soooo much love. xxxxxxx

  30. Julie and Steve

    Rest in peace dearest, brave Ned. Our love and thoughts are with you and your family. Andy and Clare – you are the most amazing parents, your love and dedication is an inspiration. You and your family made Ned’s life so special. We are truly heartbroken for you all.

  31. Trev Mehtar & Claire B

    Overcome with sadness but am priviledged to have known such a brave, selfless boy. He touched our lives like no other.

    Much love and hugs

    Trev, Claire & Agatha

  32. Helen

    Dear Andy, Clare and all your wonderful family,
    Please know that you will all be kept constantly in our thoughts and prayers at this darkest of dark times. God may not seem to be around as how could He possibly let this happen? But He will give you the strength you will need to get through this dreadful loss of your amazing Ned. We shall keep watch and pray.

    Love from Helen Kathryn and Philip xxx

  33. tamsin hawkins

    we are so so sorry for your loss. an amazing boy and amazing parents to inspire us all.
    may he rest in peace.
    all our love , thoughts and prayers
    tamsin, mark beth and milly x

  34. Ian

    All of our thoughts are with you at this very sad time. Ned’s courage, spirit and fight was truly amazing. Rest in peace.


  35. Friend of a friend

    The memory of your fight and bravery touched an army of people and will always be remembered. Rest now Ned.

  36. Pam

    So sad to read that Ned has lost his fight. He gave everything and he knew he was surrounded by love from all his family.
    Thinking of you Andy,Clare and all your family
    Pam xxxx

  37. Vicki

    I really barely knew Ned, yet your blog made me feel as if I did. Andy, your words brought him to life, and expressed the love, humour and compassion that was present within your family every day. Anyone could see how blessed he was to have you & Clare as parents. I’m so terribly sorry it had to end. Our thoughts are with you two, Auntie Jen & Uncle John & Alice & Arthur. Xxx

  38. Maggie and Piers

    So very sorry to hear the sad news. Our love and thoughts are with you all , Goodnight Ned, God Bless, Sweet Dreams

  39. Kate, Robin, Jasper & Ottilie

    Ned will now be in the arms of the angels. He will always be remembered as the bravest and strongest of little boys… Thinking of you so much x

  40. Louella, Bill and family

    Andrew, Claire, Alice and Arthur, our thoughts are with you at this time. Please take solace in the lovely memories you have with Ned – always remember he is never far away – close your eyes and he’s there. Don’t spend too long grieving Ned would not like that from all we have heard of him he was a fiesty, vibrant little man with such a strong character. Take care all of you, always Louella, Bill and family

  41. alison bloxham

    So, so sorry. Sleep tight little Ned.
    Much love to Clare, Andy, Alice and Arthur, Jenny and John and all his family and friends. A treasured little boy.

    Alison, John, Erin and Louise xx

  42. Sue Z

    So sorry to hear of Neds passing. The insight you gave people in to this difficult situation was inspirational. Thinking of you x

  43. beccg gallagher

    So sorry to hear your sad news, been following his journey. Another little angel taken to soon. Fly High little one. love and prayers to you all. xxxx

  44. Kim Rocknean

    So very sorry to hear such sad news.

    One little boy touched so many people’s lives.

    Thinking of you all


  45. Akan Huseyin

    We pray Ned is at peace now and can rest in a beautiful place. We Pray he can live a peaceful after life whilst waiting for his family and loved ones to join him. We also pray that his family continues to be strong whilst preparing for his final journey to his new destination. We feel so sorry for your loss mate and pray you continue the love and affection you showed your son in his life now more than ever. It is only his physical self which has died his soul reunites with his Lord, who has called him back to his prescence at such an early age. He needs love and support so he can settle into his new life with ease and comfort. So yet again we pray he rests now.

  46. Laura Baker

    Sleep well little one. Our love and thoughts are with you Andy, Clare, Alice, Arthur and family.

    With much love
    Laura, Luke, Elodie and Minna xxxx

  47. Geraldine Craig

    How very very sad. All our love goes out to you. How lovely that he slept in your arms surrounded by the love that you have always given him.

    We are thinking of you all.

    Geraldine, Dave and Hedley xxx

  48. Chrissie

    So truly sorry. A very special boy who brought joy into the lives of all his friends and those around him. All our thoughts and prayers with you all.

    Love Chrissie, Chris, Alex and Josie

  49. Carl and Gwyneth

    We join your wolrd wide friends in the sadness that is Ned’s departure. Ned will never be forgotten for the loving warrior boy that he proved to be. Our love and support continues for Clare, Andy, Alice, Arthur, Jenny , John and their family members.

    Carl, Gwyneth, Sian, Alison, Sally and their families.

  50. Nick Davies

    So, so sad. I only hope you can find some peace now that brave little Ned has his.

    Thinking of you all…

  51. Pippa, Paul, Will & Emma

    Sweet dreams brave boy. All our love to you Andy, Clare, Alice, Arthur and family. You gave him everything you possibly could and he gave you 4 1/4 precious years and fought so courageously- the brightest of stars. Xxx

  52. Claire

    So sorry to hear the Ned has gained his angel wings. Another little one taken far too early. Sending you love & support . x

  53. Pippa, Paul, Will & Emma

    Sweet dreams Ned. All our love to you Andy, Clare, Alice, Arthur and family. You gave him everything you possibly could and he gave you 4 1/4 precious years and fought so courageously – the brightest of stars. Xxx

  54. Pippa, Paul, Will & Emma

    Sweet dreams Ned. Al our love to you Andy, Clare, Alice, Arthur and family. You did everything you possibly could for him and he gave you 4 1/4 precious years and fought so courageously – the brightest of stars xxx

  55. Nicky

    Sleep tight little soldier and in peace , with the knowledge that you touched so many hearts . To the family I say thanks for letting us all into your lives it has been a pleasure to help support you in our very small way. There will be an extra bright star in the sky tonight , best wishes to you all xx

  56. Caz

    Fly high Ned! xxx
    My heart goes out to all Ned’s family and friends at this sad time, remember he will always be with you in your hearts xxx

  57. kate

    Our hearts are with you, you are not alone. Your love with carry you through and Ned will be with you forever.

    With all our love sent heartfelt to you today, having lost our own boy, we understand.

    Kate and Tim xx

  58. Fellow heart parent

    So sorry to hear dear sweet warrior Ned has lost his battle. Your blog made him known to those of us who didn’t have the pleasure of meeting him. I only hope you can take some comfort in the fact that everyone did everything humanly possible to keep him with you, including Ned himself, and he will now sleep peacefully surrounded by your arms.
    Sleep tight sweet angel.

  59. Sally Otter

    I’m so very, very sorry. What an amazing boy and what amazing parents. You’ve shown such immense courage and dignity on what must be the hardest journey anyone could ever take. We send you all our love on the saddest day. Thinking of you. Sally, Jon, Olive and Bert xxxxxxx

  60. Ian, Lynne & all the family

    So sad to hear your news. Ned was so lucky to have such wonderful devoted parents & family & the love you gave him was wonderful. Our love and support are with you, Clare, John, Jenny, Alice, Arthur & all the famiily Sleep well Ned xxx

  61. Lorraine Henry

    Truly sorry for your loss. Rest your weary head little warrior you valiantly fought the hardest battle and now it’s over, so you can sleep peacefully. xxxxxxxxxx

  62. Annie Ramsay South

    Dear Andy and Clare. Thnkyou both so much for your honesty,courage,dignity and positivity during this tough journey. Your beautiful son Edward touched the hearts of so many and my heart is feeling for you both and your family and dear friends at this very sad and difficult time. As has been mentioned many times, Edward was a true warrior to the end and now he has joined God’s army of soldiers to continue to help and inspire people’s lives in a different way. You are truly amazing parents who were blessed with a very special miracle child who will continue to live on in everyone’s menories forever.Eternal rest give unto him oh Lord and let perpetual light shine upon him.May he rest in peace Amen xx

  63. Stephanie (foggyknitter)

    May Jesus’s love and peace be with you now, and may his light shine to see you through the darkness, I only heard Ned’s story last week and even in that short time he has blessed me. I will continue to pray for you all. When my best friend died of a similar heart condition I couldn’t help thinking that she was now rejoicing in a whole heart and a well body and running like she’d never been able to, around and around the eternal city and now Ned must be running with her.

  64. Naush

    So so sorry to read this heartbreaking news. Ned has been incredibly strong and brave and you have all been amazing through this; deeply saddened to hear he’s gone.
    I’m a stranger to you but have been praying for your son and am crying for him now. He was obviously very, very special to have touched so many people.
    I’m certain he’s at peace now and in paradise, no longer in pain but instead with God, basking in His love.
    You will get through this awful time and you are still blessed to have so many precious memories and moments that you made with him and can hold onto forever. He’ll always be a source of joy to you and his memories will pull you through the darkness of grief and loss.
    Wishing you all peace and solace.

  65. Justin Sketchley

    So sorry to hear of your sad news, Ned fought such a brave battle supported by his wonderful parents and family , we are thinking of you all, with our love Justin, Lucy, Harry & Annabel xxxx

  66. Cheryl

    There are no words to express the sadness we feel for you. Love to each of you from Cheryl, Bob, Janna, Jason, Brandon, and Austin.

  67. Catherine

    Your beautiful, brave little boy Edward has touched us all. We send you all of our love Catherine, Paul, Ben and Olivia xxxx

  68. Ian and Jen Ponton

    We are so sad for you all. Your little Ned is now at peace & now we wish you peace as you face the time ahead. Love to Clare &Andy , Jen & John, Alice & Arthur & all the family.

    Ian & Jen

  69. Wendy Fairbairn

    Dear Andy, Clare, Alice and Arthur

    We are so sorry for the loss of your beautiful boy Ned. We admire your courage and strength and hope that this stays with you in the days to come.

    Rest and be free little angel.

    With much love Wendy and Katie.

  70. Clare, Tim, Isabella & family

    Our love, thoughts and prayers are with you all at this time of deep sadness. You are all so brave. Ned, what a truly precious, inspirational and wonderful little boy. With all our love from Clare, Tim and our families XXX

  71. Simon and Barbara

    So sorry to hear your sad news. Our thoughts and prayers are with you as they have been with Ned. We wish you peace and strength.
    Simon and Barbara

  72. Lorna Willson

    Andy and Clare, I am so sad to hear this news this morning. What an unbelievably brave little boy who has touched the hearts of so many. My thoughts are with you and your family. Rest in peace Ned.

  73. Norma

    Dearest Clare and Andy,
    So sorry your little Edward could battle no longer; he was so strong and determined for so long; but now deserves his peace. Only hoping you can find comfort in this. My love, thoughts and prayers to you both, Arthur and Alice and all your lovely supportive family.
    I will remember Edward, with such big dark brown eyes and the brightest, cheekiest smile. When people say ‘A smile that lights up a room’, well his did.
    For a child of four, he has made such an impact on so many people’s lives, and I feel privileged to have known, and been able to care for him at nursery; where he made us all smile with his funny little comments. He had a great sense of humor.
    From what I could see at nursery, the love he had for Arthur had that special ‘twin bond’ and although they grew in time to be able to play separately there was often an inquiring question from either of them, just to check where, or what the other one was doing. You will know this.
    We had a lot of feed back off Arthur and Edward about starting school and I’m sure Alice will play that vitle role of support for Arthur. She is a gorgeous big sister.
    Edward was one special little boy; but you don’t need me to tell you that. All my love Norma. xx

  74. sue and rob wormald

    So very sorry that you have lost such a brave little boy. A much loved son, brother, grandson and nephew. Thinking of you all at this very sad time.
    Love Sue and Rob

  75. George & Mo

    So, so sad, such a brave little chap; he really was exceptional but then he was blessed with exceptional parents – and close family.

    Our love and thoughts are with you all x x x

  76. Rachel Forrester

    I have been following this everyday, praying for you all. I only met your lovely parents briefly many years ago and never met you, darling Ned. You have touched so many hearts Ned, now it is time to rest. ‘Never judge a song by its duration, but by the richness of it contents’. With love and deepest sympathies to the whole family. x

  77. Hugh & Hanneke

    Our hearts have been so full today. All three of you have been so very much in our hearts and minds and prayers these last two weeks. We have so warm and lovely memories of so brave and sparky a boy enjoying life and especially his little guitar! We do so pray for peace for you both. No parents could have done more, been more or loved more to give him joy in this world and to pull him through such a stormy path.

  78. Helen Simpson

    I have only read your blog these last few days, but followed avidly, drawn in by the strength of your writing, the will for Ned to pull through and thoughts of all the times I’ve waited for my own beautiful (heart)boy to let me know what the outcome will be. I feel so privileged to have ‘known’ you and Ned through your blog and want to add my deep sorrow to the comments here. Sending you and your family all my love, hugs, thoughts and prayers. It is clear Ned has touched and continues to touch many many people. Reaching out to you at this time, with love, Helen

  79. sally spring

    Ned fought a great fight such a brave little boy. Know that you provided him with all thelove he could ever need. His life was much too short but boy did he light up our world. Sleep tight Ned XXX

    So sorry for your loss Andy and Clare losing a child is not what any parent should have to bear

    You remain in our constant thoughts
    With love
    Sally Dave Ben and Sam xxxxxx

  80. mark and Rosie

    Thinking of you all the time, Ned fought the greatest battle and is at peace now. You did the most, most amazing job. With much love to you all,
    Rosie and Mark

  81. Nici

    Ahhh, I am soo sorry to hear your sad news, he put up an amazing fight as did you both. Angel blessings Ned, rest in peace after you long fight. Blessings to you, Claire and your family at this tough time xoxoxoxoxoxoxo

  82. Chrissie Edge

    So truly sorry. A very special boy who brought joy into the lives of all his friends and everyone around him. All our thoughts and prayers with you all.

    Love Chrissie, Chris, Alex and Josie

  83. Kira and Iain

    Andy and Clare,

    We are so sorry to hear your news – our hearts break for you, and Alice and Arthur. We are thinking of you and your family. Ned was a true champion.

    All our and prayers,
    Kira and Iain

  84. hugh +hanneke coleridge

    The last weeks we have been with you day and night. You have come across the North Sea with us and have impressed our family here with your wonderful family in love, courage and perseverence. Our grandchildren also prayed for Ned and wanted to know how he was, whenever we had read your blog.
    We are at Vanessa’s house at the moment and are all sharing your deep sadness. At the same time we are glad that Edward is not suffering anymore. Little brave boy! We’ll miss him big time. Thank you so much for allowing us to walk this journey with you in our own way. Like many, we will continue to pray for all of you. Ned went over from your arms into Jesus arms, not just any arms. Relaxe and have fun Ned!
    Lots of love and hugs.
    Hugh and Hanneke

  85. Clair Tucker

    Very sad to hear that Neds battle has ended. We have passed Clare Arthur and Edward everyday in the buggy since we moved to Cirencester 4 years ago. Always smiling and happy. Such a gorgeous boy with one of the bravest and selfless Mums I’ve ever met. True inspiration and courage that we will never forget.
    Much love Clair, Julian, Harry and Emily

  86. Ruth & Roger

    No words an express the sorrow we feel for you in the loss of Ned, your brave lovely little boy. He was surrounded throughout his life with the utmost love and care from you and the whole family. Our hearts go out to you with love from all the Watkin family. X

  87. Fleur van Gunsteren

    Pain, all i feel is pain, i hope to carry yours a little but know i can not share this pain, i hope dodie’s poem helps with your acceptance.

    I pray tribute to a bright, wonderful, brave, new star in the dark, dark, sky tonight, which will be there forever. .

    I also pay tribute for you both, what wonderful parents you are, and have been. So proud to be a small part, thank you.

  88. Jon Carter

    Tragic news that we were dreading to here.
    Out thoughts are with you all.
    If we can help in any way, then please ask.
    Jonathan Sue Alex Harry & Dylan

  89. Judy & co

    So so sad, such a brave soul and a dear dear little boy. He was blessed to have such wonderful parents and family. Thinking of you all.
    With much love and many prayers
    Judy x

  90. Emma

    One little boy, an inspiration to many. To inspire a huge army of people to come together and pray for him. A soldier who fought a courageous battle who lost with dignity but won with love. Sleep with the angels Ned and may your love keep your family strong now. Xxx

  91. Miss Spriggs

    Edward I am so very sorry that we can not share the next steps together. I know you would have been a proper little school boy, scuffed knees and all. I promise to look after your brave brother and big sister. Sleep well beautiful boy you will be in my thoughts.
    Miss Spriggs

  92. Catherine

    I read your posting at 7.30 this morning and have been trying to find the words, but there are none.
    Sweet dreams little man.
    All our love to all of you
    Catherine, Julien, Lucy, Louis and Fleur

  93. Olivia Folkesson

    Dear Claire, Andy, Alice and Arthur,

    So sorry to hear of your loss, Edward was such a handsome little chap. He was very brave and did amazingly well and went through so much. Claire and Andy, you are wonderful parents and an inspiration to us all.

    We continue to pray and be thinking of you at this sad time.

    Lots of love and hugs

    Olivia, Martin, Emily, Natalie and Jesper xxxxx

  94. Catherine

    All day I have been trying to find the words to explain how Sorry we are for this sad loss!
    Andy and Claire you have got to be the most strongest parents I have ever met and you have been an inspiration to myself and Ash!
    I am so happy that I got the chance to meet your beautiful solider!
    Ned is in everyone’s thoughts and prayers on this sad day.
    May Ned rest in peace with all the angles

    Abaigh’s family

  95. Laura, Martin, Jamie, Charlie and Jessica

    Dear Andy and Clare,

    So very sorry to hear that Ned lost his battle today. He has been so brave and So lucky to have such wonderful parents fighting with him x

    Thinking of you all.

    With much love The Woods family xxx

  96. Sarah Stevens

    I am so, so sorry for your unimaginable loss.
    My love, thoughts and prayers are with you all and I am sending an extra big hug for Alice.
    Rest now little Edward; may you all find peace in this.
    Sarah (Mrs Stevens) Xxx

  97. Louise, Colin, Toby and Benjamin

    We are so saddened and send our prayers to all of you, and to brave and inspirational Edward x

  98. Saskia

    I’ve been following Ned’s progress over the past few weeks, thanks to Fiona. I am so very sorry for your loss. You write so eloquently about Ned that I feel like I knew him. What a special little boy and what an amazingly supportive family you have. I hope you can gain some strength from them at this very sad time.
    There have been a few angels this year for me and I like to think that my auntie and my friend’s little boy have heard me when I’ve said for them to look out for Ned.
    My thoughts are with you all.
    love Saskia xxx

  99. Ros, David, Abigail and Christopher

    So so sorry to hear such sad news. Thinking of you all at such a sad time.
    Sweet dreams little, Ed – Rest well – What a brave little soldier!
    All of our love

  100. Emma Urquhart

    Sleep well little man. You have found a place in all our hearts and will always be there.

    Andy, Clare, Alice and Arthur we can only send all of our love and prayers and hope in some way it helps you all. Much love. Emma, James, Izzy and Millie xxxx

  101. Victoria

    Such a brave and special boy from such a special family. Thinking of you. Sending all our love and prayers Nick, Victoria, Freddie and George xxx

  102. Claire Diss

    Sorry for your loss, such a beautiful brave lil boy who has found his Angel wings. Love and prayers are with his family xxx

  103. Bob Morris

    Thinking and praying for Alice and Arthur right now … And of course Ned’ brave parents … You have conducted yourselves admirably through this very rough and tough time.

  104. simon

    Dear Andy,
    We are all so sorry to hear such sad news – the moment that we all hoped would never come.
    Ned was an amazing little boy with such courage – courage that he gained from two wonderful parents who gave him everything they could do give him the best possible chance.
    We are very very proud to have been part of his army – we will never forget him and we will never forget yours and Clare’s dedication and love for him – you are an inspiration.
    Our thoughts are with you, and will continue to be – we will be there for you and for Alice and Arthur.
    With all our love,
    Simon, Rachael, Mollie and Jemima xxx

  105. Helen cooper

    Sending you our love and prayers. I will remember such a smiling boy from music monsters and friday under fives. A truly brave boy and family. Our thoughts are we with you. Much love Helen, Paul, Samuel and Edward

  106. Jools

    If it’s true that our souls choose the companion souls whom they want to share their journey through life, Ned chose well, as did you.

    Thank you for sharing your journey with us and for allowing us to support you. Thank you for inspiring us with the depth of your love for Ned and each other.

    Sending you love, from one parent to two amazing parents. And know that the support for you goes on, in our hearts.

    With so much love,

    Jools xxxx

  107. Anita

    Sleep in peace, little Ned. Your bravery and spirit were an inspiration to us all, and will never be forgotten. It’s not often a four year old makes such a positive impact on the world around him, but through all those prayers and love, Ned most definitely has. To Clare, Andy, Arthur and Alice my thoughts and prayers are with you. May God be with you right now and help you through this hardest of times. With love x

  108. Pippa, Paul, Will & Emma

    Andy and Clare – all of our love to you and Alice and Arthur. So very sorry. Hoping that the wonder of his happy and courageous life will gradually fill the emptiness. Our thoughts are with your family and Ned- the brightest of stars. Xxx

  109. Lisa, James, Olivia and William

    May others words of love and support help you to find comfort and strength in the difficult days to come.

    Those we love remain with us for love itself lives on, and cherished memories never fade because a loved one’s gone. Those we love can never be more that a thought apart. For as long there is a memory, they’ll live on in our hearts.

    Edward is, and always will be a truly inspirational little boy who showed us all courage and determination no matter what life dealt him. He will always remain in our thoughts and hearts, as will his wonderful family too.

    Sending you all our love Clare, Andy, Alice and Arthur xxxx

  110. The Rybergs

    Our thoughts and prayers are with you all, what an amzaing person Ned is and what a wonderful family you are. He was surrounded by such love he was so brave. Love to you all Jonas, Gaye, Sofia, Charlotte and Matilda xoxox

  111. Amanda, Tim, Sam & Ella Humphrey

    God saw you getting tired
    A cure was not to be,
    So He put His arms around you, and whispered, “Come To Me.”
    With tearful eyes we watched you and saw you fade away.
    Although we loved you dearly, we could not make you stay.
    Many times we thought of you, many times we’ve cried,
    If love alone could save you, you never would have died.
    A golden heart stopped beating,your tender hands at rest,
    God took you home to prove to us He only takes the best.

    You generously let us in to an incredibly intimate time of your lives and I only hope if the situations were reversed I would handle it with the selflessness and dignity you have shown. You are an amazing family and Ned’s army salutes you.

  112. Elizabeth V. Cardoza

    Dear Andy and Clare:

    We are so sad to hear this news – God be your strength –

    fr cousin Elizabeth (Singapore) and children: Arjun, Mira, Rekha & Neel (US)

  113. Michele Hugill

    Thank you for sharing your journey with us and for allowing us to support you. Such a brave and special little boy now it’s time to rest in gods arms. You will be in my thoughts and prayers.

  114. Lin and Stan Pattison

    You have all been constantly in our thoughts and it has taken me 24 sad hours to put this in writing. Such lovely tributes to a very special boy and his amazing family……you have been an inspiration to us all and we will not leave you now. xx

  115. Lee Broderick

    I am so very sorry to hear that Ned has passed away. He fought the bravest of battles.

    “If love alone could have saved you, you never would have died” (Unknown).

    My thoughts are with you all


  116. Jen

    Words failed me yesterday – but please know that we have all been, and will continue to be, remembering you and praying for your family. Jesus says “Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these.” I’m not sure about Ned resting now – I think more likely he’s running and laughing – but above all, he is at peace.

    Jen (Miss Austen)

  117. Sam Beckley


    I am truly sorry to hear about your loss. My thoughts are with you and your family at this sad time.
    May your little lad rest in peace.


  118. Sandra, Bill, Kirsty & John

    We send our love to you all – Andy, Clare, Alice and Arthur at this sad time.

    We will all remember and cherish our times with your lovely brave, wee boy, Ned, no matter how short those times were. He made a big impression on us all. We will fondly remember his mischievousness, his sparkling eyes and how he made us laugh.

    Please give Alice and Arthur big hugs from us.

    Andy, Clare, John & Jenny – our hearts go out to you all – we cannot imagine how those last four weeks have been for you, but one thing is certain – Ned could not have been cradled in the arms of a more loving family.

    RIP, Ned.

  119. Anne and David Ferguson

    No words can express the sadness in your loss of Ned, such a precious, brave and special boy.

    Our thoughts are always with you .
    Much love to Clare and Andy, Alice and Arthur and all your loving family. x

  120. Bridget and Ben

    Dearest Claire, Andy, Alice and Arthur,

    We are so incredibly sorry and saddened to hear that little Ned has passed. You have been on the most difficult journey and you have shown nothing but strength, love and courage every step of the way. You really are a truly beautiful and inspirational family.

    Sending love and best wishes to you all, you’re in our thoughts.

    All our love Bridget and Ben xxxxx

  121. Wendy

    I know there is not a word that any one of us can write or say that will help to soothe your broken hearts right now but hope that all our love thoughts and prayers will in time provide some comfort to you. Ned is now at peace and in his short life has inspired so many and will live on in so many hearts.

  122. Emma Greenhalgh

    So, so sorry to hear about your loss. What a brave boy and what a brave and inspirational family you are.

    What an imprint you have left on our hearts, Ned.

    Thinking of you all at this unimaginable time. Big hug for Alice.

    Emma (Miss Greenhalgh) xxxxx

  123. joc marchington

    It has taken me this long to clear my eyes and put finger to key pad…so, so sorry for your loss, I can’t begin to imagine the pain you must be feeling, I only met Edward briefly on his visit to our classrooms and was looking forward to getting to know him, along with his brother Arthur.
    We will all take special care of Arthur in September and will always remember ‘Ned’ as an inspirational little boy with an amazing courageous family. Big hug for Alice x

    ~Say not in grief ‘he is no more’ but live in thankfulness that he was~

    Mrs M x

  124. Phil

    Andy – I can’t find words to express how sorry we all are. Our thoughts and prayers are with you and your family.

    Kindest regards



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