Once again, we need your help

Friends, I am afraid that I have to tell you that Ned has, despite all our efforts, once again deteriorated. He is now so weak that he is unexpected to survive without emergency heart surgery this afternoon. This surgery is itself extremely risky and he has less than a 50% chance of survival. We have discussed his options with the cardiology team and have all agreed that this is his only chance. Surgery is due to commence at around 2pm and will last 5-6 hours.

He has proven again and again that he is a fighter but we must now leave his fate with him and his surgeon.

I would like to thank you all from the bottom of my heart for all the love and support you have given us and ask, once again, for another huge collective force of love, prayers and hope.

Thank you.

Andy & Clare

82 thoughts on “Once again, we need your help

  1. Vicki

    Absolutely Andy, and I intend to share this with trusted friends to add to the positive energy. What your family is going through is indescribable, yet you manage to do so. All my love & thoughts xxxxxxxx

  2. Robyn

    Hi Clare & Andy & Ned,
    You don’t know me – I have been coming along to FUF’s for a little while now, sort of helping out – sort of just hanging around! I go to the baptist church in Cirencester. I want you to know that I have been fervently praying for Ned since his first operation. I have been praying through the day and during the night for a full recovery for him & for support & peace for you, his family during this difficult time. I will be praying all afternoon during this operation. God is good. God bless you all.
    With love,
    Robyn x

  3. Fran and Malc

    Clare and Andy
    We are so sorry to hear the latest news of Ned. We are thinking of you all and especially of dear little Ned. We send all our positive thoughts, love, hope and prayers.
    Fran and Malc xxxx

  4. Polly Byrne

    We are sending everything to you darling Edward, Clare and Andy. Prayers, strength, positivity, hope, everything. Words can’t express what we are feeling for you, so I won’t try, but please know that everything possible is coming to you all from us. XXXX

  5. Ali Jackson

    What you’re going through puts everything into perspective. I wish Ned and you and all your family all the love, prayers and hope in the world. xox

  6. Aisling

    Sending as much love, support, wishes, miracles, strength, healing thoughts and all the other things your amazing Ned needs; all the way from Singapore. Everything is crossed for you. X

  7. Trev Mehtar & Claire B

    I am not religious but will pray to everyone and anyone that is listening for extra strength for Ned. Constantly thinking of you all and still sending positive vibes and love.

    Claire & baby Agatha x

  8. simon

    Oh Andy,

    If anyone can do it, Ned can! We’re all here for you and sending everything we have.

    Simon, Rachael, Mollie and Jemima x

  9. Sally Spring

    Sending you absolutely everything we have ……I do not have any words to
    describe how much we want this to work…
    Sending you all the biggest lot of love and hope we can muster..

    Sally, Dave, Ben and Sam xxxxxx

  10. Norma

    Dear Clare and Andy; so sorry to hear of Edward’s deterioration.
    Love, prayers , strength and positive thoughts to Edward, yourselves and all your family; to the surgeons and medical teams who are trying their very best for Edward right now. It feels like there are so many people around the world supporting and sending their love. XXXXXXXX

    1. Helen Booth

      There’s a group of us here in London who are rooting with our might for precious Ned. Sending the purest positive thoughts, strength, love and prayers from across the bridge, guys. As others have said, you are not alone in this. Come on Ned and his team. xxxx

  11. James Whistler

    I like the comment above about Ned’s army rooting for him; it’s perfect. We are all here, wishing you well with every fibre of our being, Ned. You should be in there right now. Godspeed, little man.

  12. Geraldine Craig

    We are praying and sending all our positive thoughts to dear little Ned. Geraldine, Dave and Hedley xxx

  13. Catherine

    I’m thinking of you all constantly. I’m another non religious person who keeps finding myself praying – the kids keep asking me who I’m talking to! We’re all behind you Ned – just you keep proving them wrong little man XXX

  14. Cally, Stu and Jude

    We are praying for Ned to get through this. And we send you and Clare all of our love at this awful time x x x x

  15. Suzie

    Ned everyone at Little Hearts Matter is thinking of you and your Mum and Dad. Find every ounce of strength and focus it on getting through this surgery and for recovering afterwards. Our hearts are with yours.

  16. Steff, Dave, Bethany Jethro and Tirzah Kingsley

    praying for you. As others have said you are not going thru this alone.
    “When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze. For I am the Lord your God, the Holy One of Israel, your Saviour….. you are precious and honoured in my sight and I love you.” Isaiah 43 v 2 – 4.
    Love you guys. xxxxxxxx

  17. Ian Cowie

    Andy and Clare

    Everything possible is crossed and hoping for the best. You are in every single thought of ours.

    Ian and Sam

  18. Adam, Sandy, Daniel, Lilly

    Thinking of you all.
    We are sending our combined love, hope and wishes.
    You have some good luck Ned xxxx

  19. Ian, Lynne, Martin & Jules

    We are all praying for Ned to get through this and sending positive thoughts & love to you all.

  20. Vickie Holloway

    Come on little Ned you can do this! Sending you everything we have, with much love and prayers
    Vickie Craig Evie Annabelle and Sam xxxx

  21. Maggie and Piers

    so sorry to hear of this latest setback, Ned has fought so hard we wish him the strength to see him through this ordeal, our love, thoughts and prayers are with you all.

  22. Annie Ramsay South

    Dear Andy and Clare, Please be strong and know that all your frinds and family are sending positive thoughts and love. My mum has just landed in Lourdes to day and she is going to ask her group to all pray for little Ned and for Our Lady to give him the strength to get through this tough time. My sincere love and very best wishes to you and all your family Annie xx

  23. Emma Urquhart

    We’re sending you all our positive thoughts, energy and prayers and thinking of you all constantly. Love to you all. Emma, James, Izzy and Millie xxxx

    1. Warren

      Come Ned, hang on in there, we are all behind you. Love, thoughts and prayers from Singapore. You too Andy & Clare, hold on tight.

  24. Charlie & Harry

    Dear Andy & Clare
    I know we are strangers to you but I want to say how sorry I am to hear about Ned’s setback…Harry & I are praying so hard for you. Come on little warrior, you have fought so hard, we wish you the strength you need to get through this xx

  25. Mike

    You can have it all – I too am not a religious person – but i will ask for whoever is there to help.

    Ned fight on son fight on!

  26. Helen Cooper

    Keep fighting little man. We are sending you all our love, energy and prayers. Helen, Paul, Samuel and Edward Cooper

  27. Lin and Stan Pattison

    We’re part of your supporting army, Ned, and have been following you every step of the way. Words fail us this afternoon but this is just to let you know that our love and positive thoughts are with you all. xx

  28. Sally Otter

    We’re so very sorry to hear that Ned’s condition has deteriorated – I can’t put into words how sorry. Come on Ned, we’re thinking of you, and sending all our positive thoughts to keep you and Clare company during what must be a horrendous wait. Huge love xxxx Sally, Jon, Olive and Bert

  29. Natalie Baird-Clarke

    Isabella and I just sat on the kitchen floor and prayed together, and I asked all my FB and Twitter friends to send their positive thoughts and prayers to Ned.
    Thinking of you all. Come on Ned.

    All our love. Xxx

  30. Alison Bloxham

    Am lost for words – our thoughts are with you all.
    Hoping and praying Ned gets through this.

    Much love,
    Alison and John xx

  31. tamsin hawkins

    you are never out of our thoughts-keep fighting and we will keep praying. love to you all tamsinx

  32. Olivia Folkesson

    We are continually thinking of you little man, just hope and pray that Ned continues to fight and climb that mountain. Andy, Claire and family lots of love to you all you have been amazing and can only be there for Ned. Olivia, Martin, Emily, Natalie and Jesperxxxx

  33. Catherine

    I know there is nothing we can say or do but send all our love. Keep fighting Ned, we are all thinking of you every step of the way. Catherine, Paul, Ben and Olivia xxxx

  34. Sally Spring

    Just to let you know that I am clock watching with everyone as
    the end of the operation nears. I am willing with all my
    heart that the next critical hours bring some improvement
    for Ned and some comfort for you both, this must be beyond hell.
    Keep strong all of you.

    Much, much love
    Sally and family

  35. nikki shears

    Andy, clare and ned,
    Sending our positive thoughts, love and fighting spirit down the line. Stay the strong fighter you are ned- big hugs and even bigger kisses to you all there.
    Love Nikki, paul, sophie and Kian x x x x

  36. Lisa, James, Olivia and William

    Continuing to send everything we have to you Edward! Our positive thoughts and prayers are with you all xxxx

  37. Nikki

    ANdy, Clare and ned,

    Sending all positive thoughts down the line, Stay the strong fighter you are ned. Big hugs and even bigger kisses.
    Love Nikki, paul, Sophie and Kian xx x

  38. Nikki Shears

    Andy, Clare and Ned,
    Sending lots of positive thoughts and prayers down the line. Stay the strong fighter you are ned. big hugs and kisses.
    Love Nikki, Paul, Sophie and Kian x x x

  39. Nikki Shears

    Sending all my postive thpought and energy down the line. Stay the strong fighter you are ned.
    Love Nikki, Paul, Sophie and Kian x x

  40. David and Val

    I don’t know what controls our destiny, but whatever it is I’m pushing it positively as hard as I can.

  41. nikki Shears

    Andy, clare and ned,

    Sending positive thoughts and vibes. Stay the strong fighter you are ned.

    Love nikki, paul, sophie and kian x x x x

  42. Val and David

    We are thinking about you all constantly and hoping and praying that Ned’s fighting spirit and great courage will get him through. Our local church has been praying for his recovery too.

    With our heartfelt love, hope and positive vibes,


  43. Emma Pete and Rosie

    Thinking and praying for Ned constantly. Sending you love and support. Emma Pete and Rosie xxxx

  44. James Whistler

    Can’t really express all that we feel and hope for concisely any more; you haven’t been out of our thoughts all day.

    With all our love,
    J, J, H & C

  45. Clare, Tim, Isabella & family

    You are all constantly in our thoughts and prayers.
    We are sending you all our love and support.

  46. James, Julia, Hen and Catherine

    We are still with you in spirit and in prayer. Love to you both Andy and Clare – keep strong – and for darling Ned – keep fighting young man. Love from us all, for however long it takes – James, Julia, Hen and Catherine xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

  47. Another friend of a friend

    Nothing new to add but wanted you to know how very many strangers are thinking of you and praying for your little man. God bless x

  48. Rachel Richings

    Hello. We don’t know either by name at all but maybe by sight from FUFs and Powells. Your blog has moved me immeasurably and I believe you are an exceptional family. All of my thoughts and prayers are with you all, especially Ned.
    God bless.

  49. Ruth & Roger

    And underneath are the everlasting arms. Godspeed Ned, Godspeed Claire and Andy, Godspeed Jenny and John and the whole army of brother, sister, family, friends and medics. Roger and Ruth


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