Author Archives: hlhsdiary

School of Love

It’s hard to believe that it is only just over two months ago that we took Edward and Arthur for their open day at Powell’s School. Edward loved it, but Arthur was a little more circumspect. He was so happy at Mrs Berry’s, the wonderful nursery that all of our children have attended, and had made it absolutely clear that he wanted to stay there, in his words, “forever”. So it was been with some trepidation that we have been waiting for Arthur’ first day at school to arrive, especially without his twin brother around to keep him company. Continue reading

Some Late Summer Sun

Since I last posted, it’s been my birthday, our wedding anniversary and we’ve had a short break in Cornwall. The birthday and anniversary were both pretty subdued affairs but they were still meaningful and a valuable reminder of the healing power of a loving family. Clare, Alice and Arthur bought me possibly the greatest birthday gift I have ever received – a beautiful framed family tree with all five of our names in it. There will always be five of us. Continue reading

Grief and Love

Unlike previous posts, I thought it best to precis this one with a quick explanation. It is, as the title says, about grief, so may be sad to read but it is also about hope and love. It’s not a cry for help or an attempt to gain sympathy – we have plenty of that from our family and friends – but it is in keeping with the style of this blog so far and is simply a reflection of how I feel. Furthermore, people keep saying to us, nicely, “I don’t know how you feel but…..” Well, I hope that this helps.

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Moving Forward with this Blog

When I started this blog I had four loose objectives. The first was to keep family and close friends up to date with Edward’s progress; the second was as a form of personal catharsis which became more and more important as his journey unfolded; the third was, sadly, to keep an account that Edward would be able to look at in years to come to learn how he had fought and overcome such a huge challenge; and the fourth was to provide a reference for other families who will have to travel the same path in the future, and to give them hope and inspiration. Continue reading

Edward’s Funeral – Address & Order of Service

It was a day that none of us wanted, but it was nevertheless beautiful. 350 people turned up at St John Baptist Church in Cirencester to help us celebrate the life of our little boy. We could not have asked for a better day, and we will forever be grateful to all of you who helped us to make it such a lovely occasion, and especially those children who came in fancy dress. There was a moment during the service when all of the children came to the front to light candles next to Edward’s coffin, to the accompaniment of Firework by Katie Perry and Mah Manah by The Muppets. It was simply lovely. Continue reading